a post from the Mind and Soul Foundation
As part of the various roles I have held, I’ve had the amazing privilege to journey with people through all kinds of challenges life can throw. Bereavement, redundancy, tragedy - if there’s one thing I have learned in 20 odd years as a medic, psychologist and church leader, it is that no matter who you are, and how you live life, it can throw storms at you. But perhaps one of the cruellest situations to find yourself in is one that often goes unnoticed by many - that can slip into the background or fall out of focus for even close friends or family - and that is long term illness.
But apart from the obvious - not being well - what is it about long term illness which makes it such a tough journey? And how does this impact on our mental health and wellbeing?
These are really important questions, so I want to unpack them in this, the first of three articles thinking about the challenges of long term illness.
There are three things, aside from the original illness that typically make life tougher when you are unwell over a longer period of time.
(1) Isolation
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(2) Emotional/Mental Health Impact
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(3) Treatment and Care
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Long term illness sucks - finding that your own body suddenly becomes the thing that limits you and holds you back from the things you long to be doing. But there are ways to manage the challenges it brings - to find the promise and potential even within pain and challenge.
Showing posts with label long-term_health_problems. Show all posts
Showing posts with label long-term_health_problems. Show all posts
Friday, 29 November 2019
Thursday, 20 July 2017
Capturing unmet needs
a post by Simone Vibert for DEMOS published on 21 June 2017
Demos has a long-standing interest in the social and financial impact of disability and health conditions. People living with serious health conditions can face a significant financial burden, a large part of which is the extra costs resulting from looking after one’s health or undergoing treatment. In new research released today,[1] Demos found that people with motor neurone disease (MND) incur average regular costs of £9,645 per year – this includes care costs, increased energy bills, travel in areas where public transport is inaccessible, and so on. They also incur one off costs (such as adapting their home or vehicle so it is wheelchair accessible) which typically amount to at least £2,175 over the course of the disease.
The scale of the extra costs we uncovered are staggering. However, our experience in assessing the financial impact of disability and health conditions has taught us that extra costs are only one side of the story. It is also vital to capture the hidden extent of unmet need: the things people go without in order to manage their finances.
Continue reading
It is not a pretty story.
Demos has a long-standing interest in the social and financial impact of disability and health conditions. People living with serious health conditions can face a significant financial burden, a large part of which is the extra costs resulting from looking after one’s health or undergoing treatment. In new research released today,[1] Demos found that people with motor neurone disease (MND) incur average regular costs of £9,645 per year – this includes care costs, increased energy bills, travel in areas where public transport is inaccessible, and so on. They also incur one off costs (such as adapting their home or vehicle so it is wheelchair accessible) which typically amount to at least £2,175 over the course of the disease.
The scale of the extra costs we uncovered are staggering. However, our experience in assessing the financial impact of disability and health conditions has taught us that extra costs are only one side of the story. It is also vital to capture the hidden extent of unmet need: the things people go without in order to manage their finances.
Continue reading
It is not a pretty story.
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